What happens when you give ukuleles to a group of neurologists? If they happen to be physicians from UT Southwestern, you get a band of self-described nerds who call themselves The Ukulele-lics and the Subcortical Band. If you’re wondering about the name, in lay terms, it is a play on the words “echolalia,” meaning “repeated speech,” and “subcortical band,” which is a malformation in the brain. </p
p>These neurologists didn’t suddenly decide to trade in their lab coats for Hawaiian shirts: their newfound musical interest had a purpose. In a time when telehealth visits with doctors are outweighing in-person visits, the doctors needed to find a way to put their patients at ease in front of a computer screen and camera. While many of us have found we can successfully communicate with our doctors via telehealth, the patients of these neurologists face more of a challenge. Most are children and all have cognitive impairments such as autism or epilepsy. </p
p>“Our patients, children and teens, are typically very delayed,” said Dr. Patricia Evans, director of Neurodevelopmental Disabilities Clinical and Residency Programs at UT Southwestern Medical Center. “About a third to half of them have autism, but all of them have cognitive impairment of some sort. This is more than just attention deficit. These are kids who struggle to understand basic things. … The autistic kids especially are rude-gaze avoidant – they don’t look at you.”</p
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The doctors found that many of the patients were engaging even less than usual during their telehealth visits and not wanting to look at the camera. “The whole (key) is to find something … other than a human face to get someone engaged,” Dr. Evans said. </p
p>A lifelong music student who plays a variety of instruments, Dr. Evans is currently a student at Frisco School of Music and Performing Arts. She found her patients responded well to music during in-person visits, so she decided to try it during telehealth visits. “It occurred to me that when I played an instrument for my kids, they get riveted, so I would start playing guitar. Then I found out if you use a puppet and you make the puppet talk, you start interacting with the child and, all of a sudden, they’re in the camera. Then I figured out if you (used) a ukulele, you could make up a song.”</p
p>Inspired by the success she had with music, Dr. Evans developed a formal research study that used various techniques, including a ukulele, to enhance telehealth visits. She approached Chris Duncan, owner and executive director of the Frisco School of Music and Performing Arts, about teaching ukulele classes to her UT Southwestern residents and colleagues who volunteered to participate in the study. “She asked us if we would partner with UT Southwestern,” Ms. Duncan recalled. “I said, ‘Are you kidding? We would love to do that.’”</p
p>Earlier this year, before the online classes began, Dr. Evans taught the neurologists how to tune their ukuleles. “She prepped them once they got the instruments,” Ms. Duncan said. “She met with the doctors to give them a few pointers just to get started. Then our wonderful teacher, Mr. Andrew [Greear], who happens to be [Dr. Evans’] guitar teacher at the school, put together exactly … what could help the doctors in just a few short classes. They ended up learning the basics – how to tune and hold the instrument and reading simple tablature.”</p
p>Dr. Rana Said, director of the Child Neurology Residency Program and the Pediatric Neurology Education programs at UT Southwestern, was among the participants. An internationally known specialist in children’s epilepsy, she described a conversation she had with Dr. Evans about engaging children during telehealth visits. </p
p>“She was telling me how it actually was very organic,” Dr. Said recalled, “and how that with Zoom and her patients that have autism, she would just instinctively show the patient some of her musical instruments. … She just kind of spontaneously picked up the guitar and would sing a very quick little song or what have you. I said, ‘Pat, that is such a wonderful idea. I wonder if this could be a research project?’ And then she took off with it. She developed every part of the science, what it was going to look like, the different toys that we might use and the ratings scale. Then the next thing you know, we were getting invitations to get ukulele lessons.” </p
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